Rockford mom raises awareness about son's incurable condition - WREX.com – Rockford’s News Leader

Rockford mom raises awareness about son's incurable condition

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ROCKFORD (WREX) -

The month of May has an extra special meaning for one Rockford mother.

Mayor Tom McNamara proclaimed May 2018 in Rockford to be Neurofibramatosis month during Monday night's city council meeting. Neurofibramatosis is a genetic condition that causes tumors to grow all throughout the body. Erin Carter's 4-year-old son, Cash, was diagnosed at his one-year doctor's check-up when the physician noticed a lot of birthmarks on Cash's body, which is one of the symptoms of NF.

Carter says she requested the official proclamation in hopes to create awareness for what her son is going through.

"There's no cure for it so that's hwy this is very important that we do this today," Carter said. "To try and raise awareness that it occurs in 1 in 3,000 births. It's the most common genetic condition that you've never even heard of."

NF Midwest is having a walk called Great Steps for NF on June 2 at 7 a.m. in Naperville.

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